Thank you to everyone who helped to make this event a great success! We have, so far, raised £150 for crps-rad.com, a new website which will provide invaluable information about this relatively unknown disease. CRPS is the most painful long term problem- more painful every moment of day than a woman in labour, classified as neuro-immune CRPS can start with damage to a nerve (as in type 2, like Sue) but it is most likely to begin with a fracture or minor injury (type 1). CRPS is said to be most like MS in pathology.
This week marks the 32nd anniversary of Sue’s accident (a hit and run when Sue was a child) and we could not think of a better way to honour this date than to raise money and awareness.
The website is an international project, linked to a facebook page (CRPS research and developments). The website is needed as doctors are largely unaware of the serious disease and Sue wishes she had a pound for every time a doc has said “CRPS? Whats that?”
We didnt manage to get all the way round the Racecourse, but no-one seemed to mind and everyone looked like they were having a good time. Many many thanks to all involved – so very proud of you all right now!